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EntryNo: 41  Date: Thursday 08:10 AM 05.08.2008 Sandy 36 Years with this thing called Alopecia A six year old with this thing called Alopecia I know of a little girl that was victimized by this awful thing called Alopecia. She remembers this first day her mommy saw a small bald spot on the back of her head. Her mom took her to the doctor and they said it looked like ringworm, and really no big deal. After all the little girl loved to play with stray animals and loved playing in sand and dirt (anything to get dirty). Well a few days later her mom noticed the spot was getting bigger and bigger still the doctors didn’t know anything. They told her mom that they would like to do a study and if it was okay. They said they where going to send in a team of doctors to do an evaluation to see what the problem is. One by one the little girl saw over 50 doctors after that one of the doctors came in and told the little girl’s mom that she had Alopecia. What!?! What is Alopecia? The doctor explained it’s a hair loss and there is really nothing they know about it and that there is just a hand full of people that they know that have it. They said there is no treatment and that most likely the hair will come back in. That was it nothing more and nothing less, you just have to see what happens. Over the next month or so the little girl would notice hair had fallen out at night, and woke with hair on the pillow in the mornings. Like any kid no big deal just brushed it off and went on with the day. She couldn’t wait to get outside and play. One day her mom and her went to K-Mart, the little girl stood in front of a mirror and was rubbing her finger across her eyelashes and eyebrows watching each little hair fall to her cubby cheeks. She called for her mom to come and look and she remembers her mom having tears in her eyes, but didn’t understand why. Over the next couple of days everything was gone. Total hair loss. Still to the little girl it really wasn’t a big deal because it wasn’t a big deal to her parents or anyone else around her. She would now wear a hat outside to play or we they would go places. She remembers people stearing at her, and adults asking her mom “So how long has she gone through Chemo?” Her mom would say she doesn’t have Cancer she has Alopecia some people would walk away still talking and some people would just stare and say “Oh what a pretty girl”. Well school wasn’t really that big of a deal neither because she went to a small Christian School and the school Principle had a little meeting with all the kids and explained to them what was wrong with the little girl. She remembers it was time to go wig shopping and what a struggle. She hated them. They didn’t feel good, they looked like old women hair she would tell her mom. After going many years to the private school she begged her parents to enroll her in High School. So they enrolled her into High School she had a pretty long curly wig at this time. Her first two years went well. Some kids would make comments, but nothing that she couldn’t overlooked. By this time the little girls skin had gotten so thick from the stares and people talking that it really didn’t bother her to much. At least that’s the way she wanted everyone to think. Her senior year had arrived. She was so excited to graduate. One day walking down the hall she saw a school mentor walking a boy with a cap on showing him around and telling him where his cl-FILTERED-es are. She really didn’t pay any attention but remembers the mentor calling him Josh. The next day Josh was in one of her cl-FILTERED-es. She looked over at Josh and could see that under his hat he didn’t have any hair. He didn’t have any eyebrows, and no eyelashes. She thought to herself there is someone like me. She was excited to get to know Josh. Disaster hit hard at school. Once Josh arrived and she started to talk to him rumors were going wild. So wild she could only take one day at a time. She started hating going to school. People were making fun of Josh and trying to take her wig off of her. Well this is about the time AIDS had just starting coming out and people didn’t know what AIDS was and how it affected people. The kids at school started to tell other that Josh and the girl had AIDS. The kids went home and told there parents that there were kids in the school with AIDS. The girl couldn’t go to the bathroom without being threatened to be beat up if she didn’t leave. After all the struggles and tragedies at school the girl dropped out. She only had a few months left of school. She had already had her invitations, pictures everything done. The pain was to awful for her to caring on. 36 later the little girl is a proud wife of a great husband, and a proud mommy to 3. This little girl is me….Yes, it’s me Sandy. I wanted to share this story with you all because now there is not just a hand full of us with Alopecia there is now 5 million of us in the United States alone. Thank you for allowing me to share my story, and if you have any type of hair loss please know that you are not alone. Love, Sandy PS: This is dedicated to Nikki. Nikki is the owner of www.flawlesshair75.com she has given me my life back. I have hair. Even though its a wig this unit shouldn’t even be called a wig. I can wear my hair in the highest ponytail. I have a hairline. Most of all after 36 years I feel NORMAL.  EntryNo: 40  Date: Saturday 12:18 PM 05.03.2008 xxx can alopecia get cured?? i'm about to put an end to my life if things continue degenerating!  EntryNo: 39  Date: Sunday 05:41 PM 03.16.2008 YoKasta Martinez Greetings from Memphis, TN!!! I am an alopecian living with this condition for the past 25 years, and I commend you for your strength and resourcefulness these past 9 years. I also commend you for bringing alopecia awareness to your friends and family and community around you -- May God bless you and guide you through your journey with alopecia!!! www.myspace.com/kastababy  EntryNo: 38  Date: Monday 07:40 AM 01.21.2008 Shanny i was also wondering if you guys collect money to get wigs for the people who need/want wigs but cant afford them, because i was thinking about starting a fund raiser at school for those who cant afford wigs thanks  EntryNo: 37  Date: Monday 07:27 AM 01.21.2008 Shanny hey everyone i have alopecia areata and i know how hard and sometimes embaressing it can be. it is always on ur mmind and you are always wondering if anyone will notice. and it also hurts sometimes, the spots get sore , i hate it, but it would help you if you could trust someone and tell them about it(like a best friend), it will really relieve ur conscience . i hope all of you are able to get through this, as i am <3  EntryNo: 36  Date: Thursday 05:36 AM 11.15.2007 Shantha Hi everyone, i have been searching for info on Alopecia for a while now and came across this link. Last year March i woke up one morning to find half my hair in the front of my head had fallen off. After visiting a dermatologist i was diagnosed with Alopecia within the space of 4 weeks i had lost all the hair in the front of head was had to start using wigs. A year and a half later i have almost full regrowth which is as frizzy as i cannot explain. My experience has been extremely hard on me, i have been fortunate i have the support of my family and boyfriend but i have realised that especially when you feel down and lose confidence, people tend to be more hurtful. This has destroyed me mentally, emotionally and financially and cannot discuss this anyone as my family worries too much and has taken immense strain because of this and having just relocated and started a new job 2 days before it happened, i have no family and friends here with me. The upsetting part is even now after regrowth everyone teases me alot becase my own original hair is long and pin straight and my new hair is so extremely frizzy and uncontrollable. The worst part of it all is that after all the progress i have made i have discovered in the last week that i am now getting patches at the back of my neck. I just don't know what to do anymore. I hope that my experience will help those suffering the same condition to be brave and be strong and realise not to let other's harsh words affect you so bad that you literally lose your hair over it. To all my bald friends out there, remember you are not alone God loves us all and i love you too. God Bless and wish you a speedy recovery. msn.com  EntryNo: 35  Date: Thursday 06:33 AM 11.08.2007 tey Hello my name is tey, I found this site from my Dr. I just found out that I have Alopecia Areata. I only have one bold spot but I'm really scare to lose all my hair, now I don't know how to wear my hair to cover it.  EntryNo: 34  Date: Sunday 06:29 AM 11.04.2007 momofateen Hello from Wisconsin. I came upon this site while searching for information for my 13 year old son who has AA.  EntryNo: 33  Date: Sunday 08:18 PM 10.28.2007 ella this is a fantastic site keep up the good work  EntryNo: 32  Date: Wednesday 12:32 PM 10.10.2007 Vikram the President please e-mail me at braineo@cox.net if you want to get a few wristbands. Thanks for your support. next page »